MdDS Balance Disorder Foundation

Dedicated to finding the cause and cure for MdDS

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Seeking a Diagnosis

Presently, there are no tests that can provide a definitive diagnosis of Mal de Debarquement.  However, your doctor will probably want to rule out other disorders that may have similar symptoms.  If you are looking for a doctor, please see the list of Health Care Providers who are familiar with the diagnosis of MdDS.  

MdDS is primarily diagnosed using patient history (such as a recent boat, air or train travel or other motion experience) and the  elimination of other disorders which may have similar symptoms. 

There is no known cure for MdDS and the cause is unknown.  It is common for test results to be entirely normal for people suffering with MdDS.  Because of this, many  patients commonly go undiagnosed or are misdiagnosed. There have been reports of some successes in alleviation of symptoms with various treatments.

Consult your physician to determine which tests are best for you.  Tests used to exclude other disorders may include the following:

  • Neurological examination              

  • ENG test (electronystagmography)

  • Rotary chair test

  • Caloric Stimulation

  • Audiogram

  • Blood tests (CBC, blood glucose, vitamin B12)

  • Blood tests for autoimmune disorders that may involve the ear 

    • ANA (anti-nuclear antibodies)

    •  TSH (thyroid stimulating hormone)

    • anti-microsomal antibodies

    • anti-cochlear antibodies

    • HLA-DR determinations                                    

  • MRI of the brain and/or MRA of the brain stem and neck

  • ECOG - if hearing is abnormal

  • Posturography

  • High resolution cat scan to rule out small fistulas or superior canal dehiscence syndromes, especially if history of barotrauma

  • Optokinetic after-nystagmus:  refer to section 7 of 9 in emedicine vestibuloocular testing paradigms

 

Informational Brochure  

This site is designed for those suffering from MdDS (Mal de Debarquement Syndrome) and the health care professionals who treat them.  If you have been diagnosed or suspect that you have MdDS or Disembarkment Syndrome, sign up for a free membership at our support site and review or search the thousands of messages from those who suffer from MdDS. Here, you will find caring people who understand what it is like to live with this rare balance disorder; members are from all over the world. Please join us to share and learn from others.

The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit PA foundation dedicated to promoting awareness of Mal de Debarquement Syndrome and seeking treatments and a cure for people suffering from this disorder.

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Copyright  © 2006-2010,  MdDS Balance Disorder Foundation, Inc. All rights reserved. Unauthorized use prohibited. Copyright materials may not be reproduced in whole or in part by persons, organizations, or corporations without the prior written permission of the MdDS Balance Disorder Foundation. The information contained in this web site is not a substitute for medical advice or treatment. 

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Last modified on June 12,  2010