About the Foundation

The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit foundation. The Foundation promotes international awareness of Mal de Débarquement Syndrome (MdDS) while advocating for those living with MdDS and seeking treatments and a cure for people suffering from this rare neurological disorder.

Mission Statement

The mission of the MdDS Balance Disorder Foundation is to promote education and research on Mal de Débarquement Syndrome (MdDS), a rare and poorly understood disorder of perceived motion.

Goals

  • To provide support and education for patients and families of those with this rare balance disorder
  • To facilitate clinical studies designed to improve the diagnosis and treatment of MdDS
  • To promote basic and clinical research to better understand the cause(s) of this unique syndrome
  • To collect, collate, and distribute demographic and other information from those with MdDS via online surveys (at present, our findings represent the world’s largest available database of results about this patient population)
  • To update professionals who provide medical care and treatment of MdDS patients

Tax-deductible contributions are used only to accomplish these goals. The overhead cost to accomplish our efforts was less than 4% last year and is budgeted to remain at this level this year. The generosity of donors is absolutely vital as we steadfastly work toward Foundation goals.


Board of Directors

Marilyn Josselyn, President
Audubon, PA, USA

Marilyn and Roger Josselyn, Co-Founders of the MdDS Foundation

Marilyn Josselyn is the face of the MdDS Balance Disorder Foundation. Read her MdDS Story here.
Holly Balog, Webmaster
COLORADO, USA
Terri Gibson, Treasurer
TEXAS, USA

Cathy Helowicz, Secretary
FLORIDA, USA

Deb Russo
MASSACHUSETTS, USA

Robert Slater, MD
PENNSYLVANIA, USA
Linda McManus, PhD
TEXAS, USA

Awards

  • Early Career Distinguished Investigator Award (PDF)
  • Clinical Educator Excellence Award (missing link)

Advisory Board

Robert Baloh, MD
Professor of Neurology
David Geffen School of Medicine at UCLA
Michael R. Clark, MD, MPH, MBA
Associate Professor of Psychiatry and Behavioral Sciences, Otolaryngology-Head and Neck Surgery, and Mental Hygiene
Johns Hopkins University School of Medicine
Timothy C. Hain, MD
Professor of Neurology, Otolaryngology & PT
Northwestern University Medical School

Ronald J. Tusa, MD, PhD
Professor of Neurology, Rehabilitation Medicine,
and Otolaryngology
Emory University School of Medicine

David S. Zee, MD
Professor of Neurology, Otolaryngology-Head and Neck Surgery, Opthalmology, and Neuroscience
Johns Hopkins University School of Medicine

Our Policies

Anti-DiscriminationIndirect CostDirected DonationsPrivacyDissemination of Educational Information


Registration and Annual Tax Information

Registration as Charitable Organization in Pennsylvania (search for MdDS)

Certificate of Registration as a Charitable Organization in Pennsylvania (PDF)

2007 – Form 990 (income tax return of tax-exempt organization) (PDF)
2008 – Form 990 (income tax return of tax-exempt organization) (PDF)
2009 – Form 990 (income tax return of tax-exempt organization) (PDF)
2010 – Form 990 (income tax return of tax-exempt organization) (PDF)
2011 – Form 990 (income tax return of tax-exempt organization) (PDF)
2012 – Form 990 (income tax return of tax-exempt organization) (PDF)
2013 – Form 990 (income tax return of tax-exempt organization) (PDF)
2014 – Form 990 (income tax return of tax-exempt organization) (PDF)


Contact Us

MdDS Balance Disorder Foundation
22406 Shannondell Drive
Audubon, PA 19403
210-641-6077 (FAX)

Contact Us by email


About this Site

By using this site and all other sites owned and operated by the MdDS Foundation that redirect to www.mddsfoundation.org, you accept and agree to be bound by the terms and conditions of this license. Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Medical Disclaimer

No advice. No endorsement.

This website contains general information about medical conditions and treatments. The information is not advice, and should not be treated as such. No endorsement of treatments or medications is implied.

Limitation of warranties

The medical information on this website is provided “as is” without any representations or warranties, express or implied. The MdDS Foundation makes no representations or warranties in relation to the medical information on this website.

Without prejudice to the generality of the foregoing paragraph, the MdDS Foundation does not warrant that:
• the medical information on this website will be constantly available, or available at all; or
• the medical information on this website is complete, true, accurate, up-to-date, or non-misleading.

Professional assistance

You must not rely on the information on this website as an alternative to medical advice from your doctor or other professional healthcare provider.

If you have any specific questions about any medical matter you should consult your doctor or other professional healthcare provider.

If you think you may be suffering from any medical condition you should seek immediate medical attention.

You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website.

Liability

Nothing in this medical disclaimer will limit any of our liabilities in any way that is not permitted under applicable law, or exclude any of our liabilities that may not be excluded under applicable law.

Credit: this disclaimer was created using a Contractology template available at http://www.freenetlaw.com.