The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit foundation. The Foundation promotes international awareness of Mal de Débarquement Syndrome (MdDS) while advocating for those living with MdDS and seeking treatments and a cure for people suffering from this rare neurological disorder.
The mission of the MdDS Balance Disorder Foundation is to promote education and research on Mal de Débarquement Syndrome (MdDS), a rare and poorly understood disorder of perceived motion.
- To provide support and education for patients and families of those with this rare balance disorder
- To facilitate clinical studies designed to improve the diagnosis and treatment of MdDS
- To promote basic and clinical research to better understand the cause(s) of this unique syndrome
- To collect, collate, and distribute demographic and other information from those with MdDS via online surveys (at present, our findings represent the world’s largest available database of results about this patient population)
- To update professionals who provide medical care and treatment of MdDS patients
Tax-deductible contributions are used only to accomplish these goals. The overhead cost to accomplish our efforts was less than 4% last year and is budgeted to remain at this level this year. The generosity of donors is absolutely vital as we steadfastly work toward Foundation goals.
Board of Directors
|Marilyn Josselyn, President
Audubon, PA, USA
Marilyn Josselyn is the face of the MdDS Balance Disorder Foundation. Read her MdDS Story here.
|Holly Balog, Webmaster
|Terri Gibson, Treasurer
Cathy Helowicz, Secretary
|Robert Slater, MD
|Linda McManus, PhD
- Early Career Distinguished Investigator Award (PDF)
- Clinical Educator Excellence Award (missing link)
|Robert Baloh, MD
Professor of Neurology
David Geffen School of Medicine at UCLA
|Michael R. Clark, MD, MPH, MBA
Associate Professor of Psychiatry and Behavioral Sciences, Otolaryngology-Head and Neck Surgery, and Mental Hygiene
Johns Hopkins University School of Medicine
|Timothy C. Hain, MD
Professor of Neurology, Otolaryngology & PT
Northwestern University Medical School
Ronald J. Tusa, MD, PhD
|David S. Zee, MD
Professor of Neurology, Otolaryngology-Head and Neck Surgery, Opthalmology, and Neuroscience
Johns Hopkins University School of Medicine
Registration and Annual Tax Information
Registration as Charitable Organization in Pennsylvania (search for MdDS)
Certificate of Registration as a Charitable Organization in Pennsylvania (PDF)
2007 – Form 990 (income tax return of tax-exempt organization) (PDF)
2008 – Form 990 (income tax return of tax-exempt organization) (PDF)
2009 – Form 990 (income tax return of tax-exempt organization) (PDF)
2010 – Form 990 (income tax return of tax-exempt organization) (PDF)
2011 – Form 990 (income tax return of tax-exempt organization) (PDF)
2012 – Form 990 (income tax return of tax-exempt organization) (PDF)
2013 – Form 990 (income tax return of tax-exempt organization) (PDF)
2014 – Form 990 (income tax return of tax-exempt organization) (PDF)
MdDS Balance Disorder Foundation
22406 Shannondell Drive
Audubon, PA 19403
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