|
June is MdDS Awareness Month
Catch the wave, help spread the word!
  
The month of June is Mal de Debarquement Syndrome
Awareness Month. The MdDS Balance Disorder Foundation is hosting
fundraising and awareness events to bring information about MdDS to the
forefront as we search for a cause and a cure for this rare disorder.
-
Hayley Wilkinson, a young lady from the
United Kingdom, recently recorded a catchy song entitled, "Rock the Boat", to help kick
off MdDS Awareness Month. The song and video have been released and
bring a new and upbeat musical perspective that encourages listeners to
learn more about MdDS.
-
On June 18th, Dr. Ron Tusa, of the MdDS
Balance Disorder Foundation Advisory Board, along with Jane Houghton,
of the MdDS Balance Disorder Foundation Board of Directors, will
present at the “The Advanced
Level Balance Course” organized by the Institute of Sound
and Vibration Research from Southampton University in England. The
three-day course is aimed at clinicians from all over the world who
have a sound knowledge of vestibular assessment and management and wish
to consolidate and advance their knowledge. Dr. Tusa will handle the
diagnosis and treatment of MdDS while Jane will explain what it is like
to live with MdDS from a patient’s perspective. Recently analyzed
patient
survey information will be included in the presentation. There is
always hope that one of those attending the conference just might crack
the mystery of MdDS in the future!
-
Catch the Chocolate Wave~ On June 18th,
Terri and Mike Gibson will host an Evening of MdDS Awareness at The
Chocolate Lounge in Old Town Spring, Texas. (http://www.thechocolatelounge.net/Home.html)
The evening will feature dessert, chocolate, wine, live music, and a
silent auction. Come have dessert and listen to the music of Gary
Floyd. (http://www.gary-floyd.com/),
participate in a silent auction, and enjoy the company of good friends
while learning more about MdDS which Terri has been living with for
over four years. For tickets, please go to: http://mddswave.eventsbot.com/
-
For the June campaign, Terri Gibson created
a new public service announcement explaining Mal de Debarquement
Syndrome and the Foundation which can be seen at www.firstgiving.com/mddsfoundation
or by clicking here. It is also easy to make a donation while visiting
the site. As always, you can find alternate ways to donate at the MdDS
Foundation web site.
-
Faces of
MdDS: Stories by people with MdDS recount their MdDS journey
including the precipitating event, getting a diagnosis and coping
skills for
living with this life-altering syndrome. We will highlight stories
during Awareness Month.
  
| Informational
Brochure |
|
This
site is designed for those suffering from MdDS (Mal de Debarquement
Syndrome) and the health care professionals who treat them.
If
you have been diagnosed or suspect that you have MdDS or Disembarkment
Syndrome, sign up for a free membership at our support site
and review or search the
thousands of messages from those who suffer from MdDS. Here, you will
find caring people who understand what it is like to live with this
rare balance disorder; members are from all over the world. Please join
us to share and learn from others.
The
MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3)
nonprofit PA foundation dedicated to promoting awareness of Mal de
Debarquement Syndrome and seeking treatments and a cure for people
suffering from this disorder.
|
| Helpful
Links |
|
Copyright
© 2006-2010, MdDS Balance Disorder Foundation, Inc.
All
rights reserved. Unauthorized use prohibited. Copyright materials may
not be reproduced in whole or in part by persons, organizations, or
corporations without the prior written permission of the MdDS Balance
Disorder Foundation. The information contained in this web site is not
a substitute for medical advice or treatment.
Last
modified on June 20, 2010
|
