What is the overhead associated with MdDS Foundation
operations?
For 2010, the overhead costs were less than 4% of donations.
These costs were associated with activities such as printing and
mailing of brochures, teleconference fees for quarterly meetings of the
Board of Directors, annual website server and registration fees,
professional fees associated with the preparation
of an annual tax
return by a certified public accountant, and licensing fees associated
with registration as a non-profit organization. Overhead in 2011
is budgeted to be similar to that of 2010.
Can donated funds be designated for use in specific
MdDS Foundation projects?
Please note that ALL donations are used to support the goals
of the MdDS Foundation which include supporting MdDS research and
furthering education about MdDS for medical professionals and the
public. Except under rare circumstances, the Foundation
discourages designation of
donations for specific purposes such as support for educational
programs. Restriction of the use of funds creates additional work for
volunteers who maintain our fiscal records and increases the fees
associate with the preparation of annual tax documents (which reduces
the amount of the actual donation that would be available to support
Foundation goals).
Do the members of the Board receive compensation or payment
for their
services on the Board of Directors of the MdDS Foundation?
No.
All members of the Board of Directors are volunteers. Most have active
MdDS. Thus, the Board is personally dedicated to finding improved
treatments and diagnostic tools for use with MdDS. The Board seeks a
cure for MdDS! And, the Board of Directors provide significant 'in
kind' support of Foundation expenses thus sparing all revenue
from donations to directly support the educational and research
missions
of the organization.
Does the Board need more volunteers for MdDS Foundation
operations?
Yes!!!! Please contact us and offer your time, talent,
and effort. This will be much appreciated by all who suffer from MdDS.
Can the MdDS Foundation recommend medications or tell me how
much
of a specific medication I should take.
No. The Foundation is not in a position to provide
medical/medication advice. A list of doctors who are familiar with the diagnosis of
MdDS is available. Please seek the advice of a health care
professional.
Can the MdDS Foundation provide advice such as whether or not I should go on
another cruise or how much medication to
take when traveling again?
No. Further travel is a personal decision that
one must make in consultation with his/her health care professional.
There
is also a private MdDS support site where people discuss their
experiences that may
be of interest to you:
http://health.groups.yahoo.com/group/mdds_support
or send an email to:
mdds_support-subscribe@yahoogroups.com
Are there any clinical trials/research studies being
conducted on MdDS?
To our knowledge, there are only two active research
studies on MdDS. One is being conducted at the University of
California at
Los Angeles (UCLA) by Dr. Yoon-Hee Cha. The other is underway at Ohio
University by Dr. Brian C. Clark. Both of these studies are funded, in
part, by this Foundation.
