Surveys Help to Better Understand MdDS

The Foundation continually conducts surveys to collect basic information to improve our ability to educate medical professionals and others to the true nature of MdDS.

If you are living with Mal de Debarquement Syndrome, please join our Patient Registry and share your information. The data collected through PatientCrossroads will help doctors better understand our disorder, recruit for research studies, and ultimately unlock effective treatments for MdDS. This link will direct you to our patient registry:

Participation in these surveys is strictly voluntary. Information derived from your survey may be included in future presentations to medical or scientific audiences; in this case, you will never be identified. The MdDS Foundation does not provide personal information including email addresses to anyone.

Medication Survey 2016 – Data will be collected through 8-31-16. Take part in our online survey.

Therapy Survey 2016 – Please report treatments or therapies that you feel have a positive influence on your symptoms. Data will be collected through 8-31-16. Take part in our online survey.

Initial Survey – Please enter information as to your experience with MdDS even if you are no longer experiencing the symptoms. Take part in our online survey.

Water Related Survey – MdDS as a Result of Water-Related Events. Take part in our online survey.

Geographic Survey – Geographic Questionnaire. Take part in our online survey.


Migraine – Please complete this survey as we attempt to collect basic information about the association between Mal de Debarquement Syndrome and Migraine. Take part in our online survey.

Survey Results

2010 Initial Survey (n = 243) (PDF)
2010 Water-related Survey (n = 160) (PDF)
2008 Medication Survey (n = 88) (PDF)
2007 Symptom Survey (n = 110) (PDF)
2006 Demographic Survey (n = 55) (PDF missing)
2007 Clinical Presentation Survey (n = 96) (PDF)

You will need Adobe Acrobat Reader to view these files. If you don’t have it, use this link to download it.