Depicting her experience with MdDS through art, Christina shared Infinite Waves with us. The strong symbolism in this painting allows those living with MdDS to find commonality and validation for their own feelings.
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior
MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition.
1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me.
After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor.
To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]
ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook. This GivingTuesday, we are focused on our goal […]
A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS.