The Foundation has two Facebook sites, one public and one private. The public Facebook page is open to all. The Foundation uses this page to educate the general public about MdDS, Foundation activities and to make important announcements.

The MdDS Friends page is a closed group that is by-invitation-only. Here members can share thoughts and questions, securely and privately. If you have been diagnosed, suspect that you have MdDS or are a caregiver of someone with MdDS, please send a Friend Request by clicking on “Join Group” in the upper righthand corner of the MdDS Friends page.

Both pages are only visible to people with Facebook profiles, and we encourage you to join the over 800 million global users.

Not on Facebook? For your convenience, we also host an online Support Group via Yahoo. Click here to learn more about our Support Groups.

Follow us on Twitter for breaking news. Our tweets are read by followers including NORD and Rare Disease Ledger.