MdDS Balance Disorder Foundation

Dedicated to finding the cause and cure for MdDS

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Mal de Debarquement Syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived movement that most often develops following an ocean cruise, other type of water travel, or motion experience including plane flights and train travel. For a few, there is no known motion event; the onset appears to be spontaneous. MdDS persists for months to years.

Common symptoms include a  persistent sensation of motion such as rocking, swaying, tumbling, and/or bobbing.  This sensation of motion is often associated with anxiety, fatigue, difficulty maintaining balance, unsteadiness, and difficulty concentrating (impaired cognitive function). Often, the motion sensation seems to disappear when riding in the car or participating in other motion experience.

December 2011
  Thanks to the hard work of supporters and the generosity of friends, families, and  interested donors, the Foundation has achieved the end-of-year fund raising goal. Research for MdDS will now go forward in the New Year. Thank you.


Alone we are Rare.                    
        Together we are Strong.   
Eurodis - European Rare Disease
UK - Rare Disease
NORD

Research Studies Seek to Understand MdDS

PET scan

  • At UCLA, Yoon-Hee Cha, MD, seeks subjects who suffer from a motion perception problem such as mal de debarquement syndrome for advanced brain imaging studies. Additional details and contact information are available here.
  • At the University of East London, Professor Christine Dancey seeks to understand ways in which chronic illness affects the lives of those with MdDS. 
  • Brian Clark, PhD, Director of the Ohio Musculoskeletal and Neurological Institute, published a study in the Journal of Neurology that documents the social and economic impact of MdDS. He plans further research studies on the neural  basis for MdDS. Contact information is available here.
Foundation Newsletter
 MdDS Foundation Advocates for Rare Disease Day
 

Complete and read results of
important MdDS surveys
 ...to help us better understand this disorder...



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Informational Brochure    

This site is designed for those suffering from MdDS (Mal de Debarquement Syndrome) and the health care professionals who treat them.  If you have been diagnosed or suspect that you have MdDS or Disembarkment Syndrome, sign up for a free membership at our support site and review or search the thousands of messages from those who suffer from MdDS. There, you will find caring people who understand what it is like to live with this rare balance disorder; members are from all over the world. Please join us to share and learn from others.

The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit PA foundation dedicated to promoting awareness of Mal de Debarquement Syndrome and seeking treatments and a cure for people suffering from this disorder.

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Copyright  © 2006-2012,  MdDS Balance Disorder Foundation, Inc. All rights reserved. Unauthorized use prohibited. CopyrightThere's also a Facebook page. materials may not be reproduced in whole or in part by persons, organizations, or corporations without the prior written permission of the MdDS Balance Disorder Foundation. The information contained in this web site is not a substitute for medical advice or treatment.

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Last modified on January 14,  2012