Patient Registry

NEW FOR 2016: We invite you to join the MdDS Patient Registry. The data collected through PatientCrossroads will help doctors better understand our…

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Research Papers Published

Research papers are listed on the Biomedical Literature page as they become available. These articles are peer-reviewed and, while written by and for medical…

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Stories of an Invisible Illness

A Journey to MdDS Land

In this story, I’m taking my friend Amy on an imaginary journey that’s very real to those of us who live with MdDS every day. We’ll be visiting a big carnival circus tent and you’ll experience several different rides and attractions – no clowns, I promise.→

Cursed by the Metro

“I believe you.” These can be the most powerful words you can say to someone who is crying each day desperate for the world to take them seriously. It is true when they say that you only realize the value … →

23 years without answers. Not anymore.

After almost 23 years of being undiagnosed, I believe I finally know why I experience the non-stop rocking sensations that have plagued me since university. I’m so happy to have found the Foundation and this site. Just knowing there are others like me →